CHARLIE

The tournament is named after Charlie Lawlor who has a syndrome called Rubinstein - Taybi (RTS), his parents Gary and Becky are keen to raise awareness of this rare syndrome.

Charlie has a twin sister who isn’t affected by RTS she is a typical 9-year-old and thrives with her learning and development, although miles apart in development and learning they are still very close.   Charlie started mainstream primary school in September 2015 along with his sister, he loves to go to school and has one to one support in the classroom, he is a very popular member of his school and everyone knows his name.

Medically Charlie is doing very well, he has had numerous operations over the years including one procedure to straighten his left thumb as this is a very common symptom of RTS and he struggles with fine motor skills because of this, as far as we know he doesn’t have any future operations.

Charlie is a big fan of Grandad Martins football team Leicester City and Gary's team Arsenal, he lives, breathes and sleeps football and any opportunity he can get he is playing it in the garden or on the Nintendo Switch!

RTS ranges from mild to severe we do not know what the futures holds but what we do know is he will always be smiling!