The Rubinstein-Taybi Syndrome Support Group is a registered charity, run on a not for-profit basis by a management committee of around 12 volunteer trustees the main aims of the group are: To offer support to families and carers of those affected by Rubinstein-Taybi Syndrome (RTS); and to help raise awareness of RTS amongst the medical community and the general population. It is funded almost entirely by
fundraising events and voluntary donations.
The RTS support group offers a telephone support network, produces a periodic newsletter, provides information about the condition (especially useful to families who have just received a diagnosis) and arranges regular family get-together days and weekends.
A donation to :- The RUBINSTEIN-TAYBI SYNDROME SUPPORT GROUP a registered charity, run on a not-for-profit basis by a management committee of around 12 volunteer trustees. The main aims of the group are: To offer support to families and carers of those affected by Rubinstein-Taybi Syndrome (RTS).
Glendinning House opens in Newton Abbot to students in September 2020*, it is a school for children aged from 7 to 19 with social interaction and communication needs including those on the Autism Spectrum.
RORY a Portugese Water Dog [PWD] has been purchased by The Rotary Club of Newton Abbot. PWD’s are excellent for providing support to those with learning difficulties, mental health problems, to children with low self-esteem. Rory’s training will mean that he will be able to pick up cues both verbal and non-verbal from people and will know the kind of support that is required of him. As the name suggests PWDs love water, his fur is waterproof and hypoallergenic which means that people are not likely to suffer allergies when they are near him. To purchase Rory and fund his training for two years will cost £7,400, the Rotary club have so far contributed £3,400 and will now fundraise for the balance. *in temporary premises until January 2021.
Meadowside Residential Care Home cares for 11 disabled adults, without regular grant funding it relies on local fundraising and donations to make improvements and repairs.
Sitting in the grounds is a brick-built hall, which has fallen into disrepair. The only entrance to the home and hall is a pedestrian gate halfway up a very narrow lane. Visitors, health professionals and others must find parking spaces in the residential roads around the Home, or at a well-used Leisure Centre further up the road. As a result, doctors, nurses, and other visitors are having to carry their equipment for quite some distance, which is proving a real challenge.
To make the charity sustainable, it hopes to convert the hall into a local care & respite centre, it has been established that there is a great need to give carers a centrally located venue for day care. To achieve this, access to the site must be created, the goal is to create a vehicular access which will both help the home and make the conversion of the hall viable.
Providing hospice care for children with life-limiting conditions. Respite and short breaks for their families, emergency care & palliative care, given at three wonderful children's hospices; Little Bridge House in Devon, Charlton Farm in Somerset, and Little Harbour in Cornwall.
Children’s Hospice South West remains open but at this time have been limited to end of life, emergency and symptom control stays only. All routine respite has for now been cancelled; however, they continue to provide ongoing support to families over the phone. Each hospice is working with the NHS and other local care providers to offer support to other vulnerable children and young people if it is required; including care in the community and supporting families in their homes.’