The Rubinstein-Taybi Syndrome Support Group is a registered charity, run on a not for-profit basis by a management committee of around 12 volunteer trustees the main aims of the group are: To offer support to families and carers of those affected by Rubinstein-Taybi Syndrome (RTS); and to help raise awareness of RTS amongst the medical community and the general population. It is funded almost entirely by
fundraising events and voluntary donations.
The RTS support group offers a telephone support network, produces a periodic newsletter, provides information about the condition (especially useful to families who have just received a diagnosis) and arranges regular family get-together days and weekends.
Research has given us machines that can restart hearts, the ability to fix arteries in tiny babies, the power to give someone a heart they weren’t born with, and so much more. But heart and circulatory diseases still kill 1 in 4 in the UK, they cause heartbreak on every street. And that’s why our work is as urgent and vital as ever.
Our research, is the promise to protect the people we love. Our parents. Our brothers. Our sisters. Our grandparents. Our closest friends.
Research is who we are. The promise of future preventions, treatments and cures. People’s donations have got us this far. Every breakthrough we’ve made, funded by people like you.
David Knight, a Charlies Trophy supporter sadly suffered a cardiac arrest at just 44 years of age and passed away last autumn, we aim to support his memory with a donation
Cystic Fibrosis is one of the UK's most common, life-limiting, inherited diseases.
Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food. Those affected are born with CF and approximately 1 in every 2,500 babies born in the UK will inherit the condition. Improvements in care and treatment mean that more and more babies born with CF will become adults. However, life expectancy is shortened.
The Cystic Fibrosis Comfort Fund is a small Bristol based charity, independent of the Cystic Fibrosis Trust, which aims to help those who suffer from Cystic Fibrosis in their daily lives and enhance their quality of life.
It was founded in 1991 by a small group of people from the Bristol Children’s Hospital following a bequest by a grandfather. In his will he stipulated the money should be used to benefit patients with Cystic Fibrosis to help them manage their own lives. There were originally two Trustees from the Children’s Hospital, a senior nurse and a clinical nurse specialist, two parents, and a lecturer in physiotherapy. The Fund grew from there and it became a registered charity in 1993.
An independent charity and part of the Citizens Advice network. Most of our 100- strong team are trained volunteers, and we are supported by local councils, a variety of specialist funders, and the public.
We serve a population of 125,000 across Teignbridge and handle thousands of enquiries each year. Money received from the golf day will go to the CATCH project to fund home visiting across Teignbridge – helping the aged and disabled, many of these have difficulty either travelling to a centre or do not have the mental skills to complete the complicated claim forms.
The Torbay Holiday Helpers Network is a network of hotels, accommodation providers, tourist attractions and businesses who are all committed to helping give away free action packed holidays, services and experiences to families who have seriously/terminally ill (life threatening/limiting) children, to bereaved families who lost a child or parent and to families who have children where a parent is terminally ill.
The Torbay Holiday Helpers Network sends families who have children with serious illnesses, bereaved families with children and families with children who have a terminally ill parent from across the UK on free holidays, not just to Torbay but to destinations across the country and abroad
The Rotary Club of Newton Abbot supports the local community by giving financial assistance, members offering their time and talents to support individuals, charities & social organisations